Offering medical advice within social media support groups and business pages managed by non-medical individuals can pose risks.
Recently, I've been told of social media groups advising members against certain diagnostic tests and medications like acid-reducing PPIs and biologics. While these discussions are thought-provoking and may present various perspectives, it's crucial to recognize that non-medical individuals are not qualified to dispense medical advice. Furthermore, their personal experiences are just that - personal experiences. Decisions regarding your healthcare should always be made in consultation with your medical team. They are the experts and have access to your medical records. If you don’t have confidence in your physician or the rapport and communication is not good, then try to find a better match. I did that five years ago and it made a world of difference. Local bronchiectasis/NTM support groups are an excellent resource for the clinicians in the area who specialize in our diseases. I include myself and my BE CLEAR business page in this discussion. Anything I post is for educational purposes only. It is for you to become aware of the pros and cons regarding an issue and to discuss them with your medical team. Do not feel ashamed or embarrassed by your current care regime and choices. I urge you to speak with medical professionals before considering any changes. Your health and well-being deserve the expertise and guidance of qualified healthcare providers. #SupportNotMedicalAdvice #evidencebased #buildastrongteam #bronchiectasis
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AuthorLinda Cooper Esposito, MPH is a health educator with bronchiectasis. She developed the BE CLEAR Method to Living with Bronchiectasis and writes with compassion and humor about this chronic lung disease. Archives
August 2024
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