Living with Bronchiectasis and a MAC Infection: My Story

Understanding Bronchiectasis and MAC

I was diagnosed with two lung conditions--bronchiectasis (BE) and a Mycobacterium Avium Complex lung infection (MAC-LD).

Not long ago, both were considered rare. Today, thanks to better medical education and the widespread use of high-resolution CT scans, BE is being diagnosed more often.

MAC, however, remains less common. These bacteria are present everywhere in our environment, but in most people they do not cause disease.

The “Chicken or the Egg” Question

When someone is diagnosed with both bronchiectasis and a MAC infection, doctors often describe it as a “chicken or the egg” scenario. Did the lung damage from bronchiectasis create an environment that allowed MAC to thrive, or did MAC infection trigger the development of BE?
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Risk Factors and Root Causes

Clues sometimes come from a person’s medical and lifestyle history. Pneumonia or chronic bronchitis, for example, can scar the lungs and lead to BE. In other cases, genetic factors may play a role. Occasionally, identifying these underlying conditions opens the door to targeted treatment.

How My Story Unfolded

Although nothing is certain in my situation, I likely developed bronchiectasis after a severe pulmonary infection in my mid-50s. That inflammation may have made my lungs more vulnerable to MAC.
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And because MAC is everywhere—in soil, water, and air—exposure is difficult to avoid. For instance, during the years my husband and I lived upstate, I kept a large flower garden and regularly spread mulch. MAC thrives in mulch, which can easily become airborne and inhaled.

Clearing a MAC Infection Through Self-Care

Fortunately, I was able to clear the MAC infection with a strong commitment to airway clearance, regular exercise, maintaining a healthy weight, and consistent stress management. These daily practices gave my body the best chance to heal and stay resilient.
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Why I Focus on Bronchiectasis in My Book

In my book, The BE CLEAR Method to Living with Bronchiectasis, I briefly share my “double-whammy” experience but focus primarily on bronchiectasis. That was intentional—many people with BE will never develop MAC or other Nontuberculous Mycobacterial (NTM) infections.

Reducing Risk in Everyday Life

Still, it’s important to talk about practical prevention. Simple steps, like wetting soil before gardening and wearing a mask while working outdoors, can reduce exposure and give peace of mind to those who want to be proactive.
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Build Your Own Bronchiectasis Self-Care Plan

If you would like help putting together a daily self-care management program, I can support you. As an experienced health educator and coach, I’ve worked with hundreds of individuals to create personalized plans that fit their lifestyle—covering airway clearance routines, exercise, nutrition, stress management, and long-term wellness strategies.
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Together, we can build a program that helps you feel more in control of your health and confident in your day-to-day life.