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Bronchiectasis Video Series

9/25/2024

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Mamma Mia! Wait until I tell you this story…

A couple of weeks ago, I recorded videos with two incredible people: Dr. Tim Aksamit from the Mayo Clinic and the new Assistant  Director of Bronchiectasis and NTM, Alyssa Dittner, BS, RRT.

My biggest concern was whether I would have a voice. Many of us with bronchiectasis experience hoarseness but additionally, I was battling a virus, a low-grade fever and brain fog.😱😱😱

Adding to the drama, Alyssa lost power at home and had to use her phone as a hotspot on her porch to moderate the discussion. When her phone died, she rushed to a nearby coffee shop for Wi-Fi.

Throughout all this, Dr. Aksamit was our island of calm, reassuring us that we would do a fine job—because that’s just who he is.

We managed to pull it off, though I'm hesitant to listen because I'm sure I sound like a frog.🐸🐸🐸

Those of us living with chronic illness know that we often tackle challenges when we're not at 100%. But if it's important to us, especially when helping others, we rise to the occasion.

Here is Medlive, the producer of the event’s announcement:

📣 Coming 9/30! Don't miss this important discussion on non-cystic fibrosis #bronchiectasis (#NCFBE) 🫁 Join us for these #PatientEducation sessions as a #pulmonologist & a patient with NCFBE explore recognition & diagnosis, management strategies, & emerging therapies 👏 

Register now ➡️ https://bit.ly/4gvXiO9

Please sign up now!! I need your support!💜🩵💙

 #Bronchiectasis #ChronicIllness #HealthJourney #PatientEducation #Pulmonology #HealthcareHeroes #Resilience #OvercomingObstacles  #HealthAdvocacy


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    Author

    Linda Cooper Esposito, MPH is a health educator with bronchiectasis. She developed the BE CLEAR Method to Living with Bronchiectasis and writes with compassion  and humor about this chronic lung disease.

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