I’m honored to serve as a patient ambassador for the incredible nonprofit organization, BE/NTM Info & Research. When I was diagnosed with these conditions seven years ago, their website became a vital source of information and support for me.
Now, their online global forum has been beautifully revamped and is easy to navigate. One of my favorite features is the search box which searches both the discussion threads and reference library. A standout aspect of the forum is the participation of our esteemed microbiologist, Dr. Joseph Falkinham from Virginia Tech, who regularly joins to answer questions about NTM (MAC) prevention. I also contribute frequently, sharing my experiences and insights alongside many others who have been managing bronchiectasis and related infections for years. I warmly invite you to explore the forum over your morning coffee or cuppa tea—there’s a vibrant global community waiting to connect! Consider joining a support group, many of which are listed on the site (including international groups). If you don’t find one in your area, don’t hesitate to reach out to me. I’ll gladly introduce you to Trisha, our Community Engagement Director, who will help you find the perfect group. Now settle in and explore the forum‼️ connect.ntminfo.org #PatientAmbassador #Bronchiectasis #MAClung #PatientAdvocacy #NTMCommunity #LungMatters #PulmonaryMatters
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AuthorLinda Cooper Esposito, MPH is a health educator with bronchiectasis. She developed the BE CLEAR Method to Living with Bronchiectasis and writes with compassion and humor about this chronic lung disease. Archives
February 2025
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